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Research

CGS investigators and trainees represent research skills and expertise in genome sciences, medical/clinical genetics, social sciences, nursing, bioethics, law, and public health. The CGS brings these individuals together in interdisciplinary teams to conduct policy-relevant research focused around four critical issues raised by large-scale genomic research:

1. The implications of genetic information for individuals, families, or populations, particularly when genetic findings from large-scale research are ascribed to individuals by virtue of their membership in socially defined groups.

2. New challenges to informed consent in response to shifting estimations of risk and benefit.

3. Unique ELSI issues posed by new technologies, data collection and storage capacities and the regulation of the use of DNA samples, control of data, and dissemination of results.

4. Translating genomic research findings into clinical or public health practice in the most efficient and judicious way.

 

CGS Research Projects

• Community Perceptions

• Community Understanding of the MURDOCK Study

• Cross CEER Collaborative Research

• ELSI Case Study Analysis of Large NIH Genetic Research Studies

• ELSI Issues in Expanded Newborn Screening

• Enhancing Biobank Capacities across CTSAs

• Ethical Issues in Genotype-Driven Research Recruitment

• Examining the “E” in ELSI” Project: Methods, Meanings, and Aims of Ethics in the ELSI Literature and Community

• Extreme Phenotypes

• Family Influence on Genetic Testing Decisions Among African Americans with Colorectal Cancer

• From Specimen to Biobank: Using an Organizational Perspective to Examine ELSI Issues

• Knowledge and Attitudes about Pharmacogenetic Testing (PGx)

• Legal Frameworks for Storage and Use of Genetic Samples and Information

• Perceptions of Ownership of Biological Samples Project

• Shifting Perceptions of the Benefit of Genetic Information

• Understanding the Genetic Registry Experience Project

 

The Center for Genomics and Society is housed within the Carolina Center for Genome Sciences at the University of North Carolina - Chapel Hill. It is supported by the ELSI Research Program of the National Human Genome Research Institute of the National Institutes of Health, Grant Number P50HG004488.