Marcia Van Riper


	The CGS is housed within the:

Also on this site:

Newborn Screening

Research Ethics Consultation Service


	*Marcia Van Riper*

Marcia Van Riper, PhD, RN, is an Associate Professor with a joint appointment in the School of Nursing (SON) and the Carolina Center for Genome Sciences (CCGS). She is the program chair for the ELSI subgroup of the Translational Genomics Group in the CCGS. Van Riper has conducted numerous studies concerning how individuals and families respond to the experience of being tested for and living with a genetic condition. As part of her K01 funded by NINR, she earned a MA in Bioethics from Case Western Reserve University and conducted a mixed-method study concerning how families define and manage the ethical issues that emerge during four types of genetic testing. Van Riper coordinates efforts within the SON to integrate genetics and ethics into the undergraduate and graduate curricula. She has developed and taught two new courses, one of which is an interdisciplinary course exploring the ethical, legal, and social implications of recent advances in genetics. Van Riper is frequently asked to help faculty in other nursing programs integrate genetics, especially ELSI content, into their curricula. She has written a number of chapters on genetics for health care professionals; one focused specifically on ethical, legal, and social implications of recent advances in genetics and another that provides an overview of the existing literature on how families make sense of, respond to, and use advances in genomics. Van Riper was one of the first six fellows in the Institute of Arts and Humanities Ethics Fellowship Program. Recently she was invited to be a fellow of the newly created Parr Center for Ethics at UNC-CH. In 2004, she was a visiting scholar at the Hastings Center.


	*Related Publications*

Cuskelly, M., Hauser-Cram, P., & Van Riper, M. (in press). Families of children with Down syndrome: What we know and what we need to know. Down Syndrome Research and Practice.

Van Riper, M. (2007). Book Review: Miller, S.M. McDaniel, S.H., Rolland, J.S., & Feetham, S.L. (Eds.). (2007). Individuals, families, and the new era of genetics: Biopsychosocial perspectives. Journal of Family Nursing, 13, 388-390.

Van Riper, M. (2007). Families of children with Down syndrome: Responding to a “change of plans” with resilience. Journal of Pediatric Nursing, 22, 116-128.

Van Riper, M. (2007). Genetics. In D. Lowdermilk & S. Perry (Eds.), Maternity and women’s health care (9th ed.). Philadelphia: Elsevier Science.

Landsman, G. & Van Riper, M. (2007). Family, household, and social context of bring up children with special health care needs. In E.J. Sobo, K. Dennis, & P.S. Kurtin (Eds.) Optimizing care for children with special health care needs in their early years. Maryland: Paul H. Brookes Publishing, Inc.

Van Riper, M. (2006). Ethical, legal, and social implications. In M.S. Runge & W.C. Patterson (Eds.), Principles of molecular medicine. (pp. 61-68). Totowa, NJ: Humana Press Inc.

Van Riper, M. (2006). Family nursing in the era of genomic health care: We should be doing so much more! Journal of Family Nursing, 12, 111-118.

Van Riper, M. (2005). Genetic testing and the family. Journal of Midwifery and Women’s Health, 50, 227-233.

Van Riper, M., & Gallo, A. (2005). Family, health, and genomics. In D. R. Crane & E. S. Marshall (Eds.), Handbook of families and health: Interdisciplinary perspectives. Thousand Oaks: Sage Publications Inc.

Ball, J., Van Riper, M., Engstrom, E., & Matheson, J. (2005). Incidental finding of ultrasound markers of Down syndrome in the second trimester of pregnancy: a case study. Journal of Midwifery and Women’s Health, 50, 243-245.

Van Riper, M. (2004). Genetics. In L. Davis (Ed.), Cardiovascular Nursing Secrets. Chapter 46. (pp. 503-510). Philadelphia: Elsevier Science

Van Riper, M. (2004). What families need to thrive. Down Syndrome News, 27, 18-22.

Van Riper, M., & Mc Kinnon, W. (2004). Genetic testing for breast and ovarian cancer susceptibility: A family experience. Journal of Midwifery and Women’s Health, 49, 210-219.

[Home] [About the Center] [People] [Research Activities] [Ethics and Policy] [Training] [Outreach] [Publications] [External Links]

The Center for Genomics and Society is supported by the ELSI Research Program of the National Human Genome Research Institute of the National Institutes of Health, Grant Number P50HG004488.