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Bailey, D. B. (2009). The blurred distinction between treatable and untreatable conditions in newborn screening. Health Matrix: Journal of Law-Medicine, 19, 141-153.
Bailey, D. B. (2008). Newborn screening for intellectual disability: Past, present, and future. In L. M. Glidden (Ed.), International review of research in mental retardation (Vol. 36, pp. 1–25). Burlington: Academic Press.
Bailey, D. B., Armstrong D., Kemper, A., Skinner, D., & Warren, S. (2008). Supporting family adaptation to pre-symptomatic and “untreatable” conditions in an era of expanded newborn screening. Journal of Pediatric Psychology, doi: 10.1093/jpepsy/jsn032.
Bailey, D. B., & Gariepy, J. L. (2008). Critical periods. In M. M. Haith & J. B. Benson (eds.), Encyclopedia of infant and early childhood development (pp. 322-332). San Diego, CA: Elsevier.
Bailey, D. B., Raspa, M., Olmsted, M., Holiday, D.B. (2008). Co-occurring conditions associated with FMR1 gene variations: Findings from a national parent survey. American Journal of Medical Genetics, 146A(16), 2060-9. PMID: 18570292 [PubMed - indexed for MEDLINE]
Bailey, D. B., Skinner, D., Roche, M., & Powell, C. (2009). Emerging dilemmas in newborn screening. Virtual Mentor, 11, 709-713.
Bailey, D. B., Skinner, D., Davis, A., Whitmarsh, I., & Powell, C. (2008). Ethical, legal, and social concerns about expanded newborn screening: Fragile X syndrome as a prototype for emerging issues. Pediatrics, 121, e693-704.
Baumanis, L. I., Evans, J. P., Callanan, N., Susswein, L. (in press). Telephoned BRCA1/2 genetic test results: Prevalence, practice and patient satisfaction. Journal of Genetic Counseling.
Bolnick, D. A., Fullwiley, D., Duster, T., Cooper, R. S., Fujimura, J. S., Kahn, J., Kaufman, J. S., Marks, J., Morning, A., Nelson, A., Ossorio, P., Reardon, J., Reverby, S. M., TallBear, K. (2007). The Science and Business of Genetic Ancestry. Science, 318 (5849), 399 – 400. (Comment in: Science, 319 (5866), 1039b)
Bussey-Jones, J., Henderson, G., Garrett, J., Moloney, M., Blumenthal, C., Corbie-Smith, G. (2009). Asking the right questions: Views on genetic variation research among participants in a colorectal cancer genetic epidemiology study. Journal of General Internal Medicine, 24(3), 299-304.
Cadigan, R. J. & Davis, A. M. (in press). Deciding whether to participate in a biobank: the concerns of healthy volunteers. In J. Kaye & M. Stranger (Eds.), Governing Biobanks: What are the Challenges? UK: Ashgate Publishing.
Conley, J. (in press). Gene patents and products of nature. Chicago-Kent Law Review, 84.
Conley, J., Doerr, A., and Vorhaus, D. (in press). Enabling responsible public genomics. Health Matrix: Journal of Law-Medicine.
Conley, J., & Moriarty, J. (2008). Scientific and expert evidence. Aspen Publishers.
Corbie-Smith, G., Blumenthal C., Henderson, G., Garrett, J., Bussey-Jones, J., Moloney, M., Sandler, R. S., Williams Lloyd, S., Dorrance, J., Darter, J. (2008). Studying genetic research participants: Lessons from the ‘Learning About Research in North Carolina’ study. Cancer Epidemiology, Biomarkers and Prevention, August 17(8), 2019-24.
Corbie-Smith, G., Henderson, G., Blumenthal, C., Dorrance, J., Estroff, S. (2008). Conceptualizing race in research. Journal of the National Medical Association, 100(10), 1235-43.
Corbie-Smith, G., Williams, I. C., Blumenthal, C. , Dorrance, J., Estroff, S. E., Henderson, G. (2007). Relationships and communication in minority participation in research: Multidimensional and multidirectional. Journal of the National Medical Association, 99(5), 489-498.
Cuskelly, M., Hauser-Cram, P., & Van Riper, M. (2009). Families of children with Down syndrome: What we know and what we need to know. Down Syndrome Research and Practice, 12, 202-210.
De Marco, M., Cykert, S., Coad, N., Doost, K., Roman Isler, M., Schaal, J., White, B., Young, D., & Corbie Smith, G. (in press). Views on Personalized Medicine: Do the attitudes of African American and White prescription drug consumers differ? Public Health Genomics.
Dressler, L. (in press). Disclosure of research results: professional boundaries and moral intuition. In J. Helge (Ed.), The ethics of research biobanks. Springer Verlag.
Dressler, L. (2009). Disclosure of research results from cancer genomic studies: State of the science. Clinical Cancer Research, 15(13), 4270-6. Epub 2009 Jun 23.
Dressler, L. (2007). Control and use of banked human specimens in research. Biospecimen “ownership”. Counterpoint Journal of Cancer Epidemiology, Prevention and Biomarkers, 16 ( 2), 190-191.
Dressler, L. and Terry, S. (2009). How will GINA influence participation in pharmacogenomic research and clinical testing? Clinical Pharmacology and Therapeutics, 86 (5), 472–475.
Easter, M., Henderson, G., Davis, A., Churchill, L., King, N. (2007). The many meanings of care in clinical research. Reprinted in R. DeVries, L. Turner, K. Orfali & C. Bosk (Eds.), The view from here: Social science and bioethics, Oxford, UK: Blackwell Publishing Ltd.
Ellison, G. T., Kaufman, J. S., Head, R. F., Martin, P. A., Kahn, J. D. (2008). Flaws in the U.S. Food and Drug Administration's rationale for supporting the development and approval of BiDil as a treatment for heart failure only in black patients. Journal of Law Medicine and Ethics, 36(3), 449-57.
Evans, J. P. (2009). The voyage continues: Darwin and medicine at 200 years. Journal of the American Medical Association, 301(6), 663-5.
Evans, J. P. (2008). Genetically guided choices for chemotherapy; In reply. Journal of the American Medical Association, 299(13), 1543-1544.
Evans, J. P. (2008). Recreational genomics; What's in it for you? Genetics in Medicine, 10(10), 709-10. NIHMSID: 85767 (PMC final approved 4-23-09)
Evans, J. P. (2008). What is art? In S. Caulfield & T. Caulfield (Eds.), Imagining science: Art, science and social change. University of Alberta Press.
Evans, J. P. (2007). Healthcare in the age of genetic medicine. The Journal of the American Medical Association, 298(22), 2670-2672.
Evans, J. P. & Burke, W. (2008). Genetic exceptionalism; Too much of a good thing? Genetics in Medicine, 10(7), 500-1.
Hayes, D., Thor, A., Dressler, L., Weaver, D., Edgerton, S., Cowan, D., Broadwater, G., Goldstein, L., Martino, S., Ingle, J., Henderson, I.C., Norton, L., Winer, E., Hudis, C., Ellis, M., & Berry, D. (2007). HER2 and response to Paclitaxel in node-positive breast cancer. New England Journal of Medicine, 357(15), 1496-1506.
Henderson, G. (2008). Introducing social and ethical perspectives on gene—environment research. Sociological Methods and Research, 37, 251-276.
Henderson, G. E., Churchill, L. R., Davis, A. M., Easter, M. M., Grady, C., Joffe, S., Kaas, N., King, N. M. P., Lidz, C. W., Miller, F. G., Nelson, D. K., Peppercorn, J., Rothschild, B. B., Sankar, P., Wilfond, B. S., & Zimmer, C. R. (2007). Clinical trials and medical care: Defining the therapeutic misconception. Public Library of Science- Medicine, 4 (11), 1735-1738.
Henderson, G., Garrett, J., Bussey-Jones, J., Moloney, M. E., Blumenthal, C., Corbie-Smith, G. (2008). Great expectations: Views of genetic research participants regarding current and future genetic studies. Genetics in Medicine.
Henderson, G. E., Mahoney, D., Corneli, A., Nelson, D. K. & Mwansambo, C. (2007). Applying research ethics guidelines: The view from a sub-Saharan research ethics committee. Journal of Empirical Research on Human Research Ethics, 2(2), 41-48.
Hsiao, C., & Van Riper, M. (in press). Research on caregiving in Chinese families living with mental illness: A critical review, Journal of Family Nursing.
Hsiao, C., & Van Riper, M. (2009). Individual and family adaptation in Taiwanese families of individuals with severe and persistent mental illness (SPMI). Research in Nursing and Health, 32, 307-320.
Kaufman, J. S. (forthcoming in 2010). Ethical dilemmas in statistical practice: The problem of race in biomedicine. In G.T.H. Ellison (Ed.) Unhealthy Professional Boundaries.
Kaufman, J. S. (2008) Dissecting disparities [Invited Commentary]. Medical Decision Making, 28(1), 9-11 (Comment on: Medical Decision Making, 28(1):12-20).
Kaufman, J. S. (2008). Epidemiologic analysis of racial/ethnic disparities: Some fundamental issues and a cautionary example. Social Science and Medicine, 66(8), 1659-69. (Comment in: Social Science and Medicine 2008; 66(8): 1670-80).
Kaufman, J. S. (2008). Hypertension and coronary heart disease. In J. Moore (Ed.), Encyclopedia of race and racism, Volume 2 (pp.138-142). Detroit, Macmillan Reference USA.
Kaufman, J. S. (2008). Slavery hypertension hypothesis. In W.W. Darity, Jr. (Ed.), International Encyclopedia of the Social Sciences (2nd ed., pp. 546-7). Detroit, Macmillan Reference.
Kaufman, J. S. (2008) Why are we biased against bias? [Invited Commentary]. International Journal of Epidemiology, 37(3): 624-626 (Comment on: Int J Epidemiol, 37: 615-624).
Kaufman, J. S., Cooper, R. S. (in press). The use of racial/ethnic categories in medical diagnosis and treatment. In Whitmarsh & Jones (Eds.) What’s the Use of Race?
Kaufman, J. S. and Cooper, R. S. (2008). Race in epidemiology: new tools, old problems. Annals of Epidemiology, 18(2), 119-123.
Kaufman, J. S. & Cooper, R.S. (2008). Telomeres and race: what can we learn about human biology from health differentials? Aging Cell, 7(4), 448-50.
Kaufman, J. S., Geronimus, A.T., & James, S.A. (2007). Faulty interpretation of observed racial disparity in recurrent preterm birth. American Journal of Obstetrics and Gynecology, 197(3):327; author reply 327-8.
Kaufman, J. S., Nguyen, T.T., Cooper, R.S. (under review). Race and medicine, and the science behind BiDil: How ACE-inhibition took the fall for the first ethnic drug. Review of Black Political Economy.
Kemper, A.R., Brewer, C. A., Singh, R.H. (in press). Perspectives on dietary adherence among women with inborn errors of metabolism. Journal of American Dietetic Association.
Kemper, A. R., & Bailey, D.B. (2009). Pediatrician knowledge of and attitudes toward fragile X syndrome screening. Academic Pediatrics, 9, 114-117.
Khoury, M. J., Berg, A., Coates, R., Evans, J. P., Teutsch, S., Bradley L. (2008).The evidence dilemma in genomic medicine: The need for a road map for appropriate integration of genomic discoveries into clinical practice. Health Affairs, 27(6), 1600-1611.
King, N.M.P. (2008). The healthy patient paradox in clinical trials. Atrium, 5, 10-12.
King, N. M. P. (2007). The glass house: Assessing bioethics. In L. Eckenwiler, & F. Cohn (Eds.), The Ethics of Bioethics (pp. 297-309). Johns Hopkins University Press.
King, N. M. P. (2007). The ethics of genetic testing: Is more always better? North Carolina Medical Journal, 68 (2), 112-114.
King, N. M. P. and Churchill, L. R.(2008). Assessing and comparing potential benefits and risks of harm. In E. Emanuel, D. Wendler & R. Crouch, R. (Eds.), Oxford textbook of clinical research ethics. Oxford University Press, pp. 514-526.
King, N. M. P. and Churchill, L. R. (2008). Clinical research and the physician-patient relationship: The dual roles of physician and researcher. In P. Singer and A. M. Viens (Eds), The Cambridge Textbook of Bioethics, Cambridge University Press, pp. 214-221.
King, N. M. P. and Cohen-Haguenauer, O. (2008). En route to ethical recommendations for gene transfer clinical trials, Molecular Therapy, 16, 432-438.
King, N.M. P., & Robeson, R. (2007). Athlete or guinea pig? Sports and enhancement research. Studies in Ethics, Law, and Technology, 1, 1-17. available online: http://www.bepress.com/selt/vol1/iss1/art1>
Landsman, G. & Van Riper, M. (2007). Family, household, and social context of bring up children with special health care needs. In E.J. Sobo, K. Dennis, & P.S. Kurtin (Eds.), Optimizing care for children with special health care needs in their early years. Maryland: Paul H. Brookes Publishing, Inc.
Langley, M.R., Booker, J.K., Evans, J. P., McLeod, H.L., Weck, K.E. (2009). Validation of clinical testing for warfarin sensitivity; Comparison of CYP2C9-VKORC1 genotyping assays and warfarin-dosing algorithms. Journal of Molecular Diagnostics, 11, 216-225. [PMC Journal – In Process]
Mejia, G. C., Kaufman, J. S., Corbie-Smith, G., Rozier, G., Caplan, D. J., Suchindran, C. M. (2008). A conceptual framework for Hispanic oral health care. Journal of Public Health Dentistry, 68(1), 1-6.
Michie, M. & Skinner, D. (in press). Narrating disability, narrating religious practice: Reconciliation and fragile X syndrome. Intellectual and Developmental Disabilities.
Neklason, D. W., Kerber, R., Nilson, D., Anton-Culver, H., Schwartz , A.G., Griffin, C. A., Ahnen, D., Schildkraut,J., Evans, J. P., Tomlinson, G., Strong, L., Miller, A. R., Stopfer, J., Finkelstein, D., Nakdarni, P., Kasten, C., Mineau, G., Burt, R. (in press). Common familial colorectal cancer linked to chromosome 7q31: A genome wide-analysis. Cancer Research.
Nguyen, T. T., Kaufman, J. S., Whitsel, E. A., Cooper, R. S. (2009). White-black difference in blood pressure response to calcium channel blocker monotherapy: A meta-analysis. American Journal of Hypertension, 22(8):911-7.
Perrin, A. J., & Lee, H. (2007). The undertheorized environment: Sociological theory and the ontology of behavioral genetics. Sociological Perspectives, 50(2), 303-322.
Raspberry, K., & Skinner, D. (2007). Experiencing the genetic body: Parents’ encounters with pediatric clinical genetics. Medical Anthropology, 26, 355-391.
Roberts, J.E., Bailey, D. B., Mankowski, J., Ford, A., Sideris, J., Weisenfeld, L., Heath, T.M., Golden, R.N. (2009). Mood and anxiety disorders in females with the FMR1 premutation. Am J Med Genet B Neuropsychiatr Genet., 150B(1), 130-9.
Roche, M. 2008. A case of genetic counseling for Dr. Watson. Nature, 453(7193), 261.
Roche, M., & Skinner, D. (2009). How parents search, interpret, and evaluate genetic information obtained from the Internet. Journal of Genetic Counseling. (doi:10:1007/s10897-008-9198-4).
Schaffer, R., Henderson, G., Churchill, L., King, N., Rothschild, B., Lohser, S., and Davis, A. (2009). Parents' online portrayals of pediatric treatment and research options. Journal of Empirical Research on Human Research Ethics, 4(3), 73-87.
Schaffer, R., Kuczynski, K., & Skinner, D. (2008). Producing genetic knowledge and citizenship through the Internet: Mothers, pediatric genetics, and cybermedicine. Sociology of Health and Illness, 30 (1), 145-159.
Skinner, D., & Burchinal, M. (2008). Interdisciplinary research. In L. Givens (Ed.), The SAGE Encyclopedia of Qualitative Research Methods. Sage.
Skinner, D. & Weisner, T. (2007). Sociocultural studies of families of children with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews (13), 302-312.
Spector, D., Mishel, M., Skinner, C., DeRoo, L., Van Riper, M., & Sandler, D.P. (2009). Breast cancer risk perception and lifestyle behaviors among White and Black women with a family history of the disease. Cancer Nursing: An International Journal for Cancer Care, 32(4), 299-308.
Sterling, R. (2008). The on-line promotion and sale of nutrigenomic services. Genetics in Medicine, 10(11), 784-96.
Susswein, L., Skrzynia, C., Lange, L., Booker, J., Graham III, M., Evans, J. P. (2008). Increased uptake of BRCA1/2 genetic testing among African American women with a recent diagnosis of breast cancer. Journal of Clinical Oncology, 26, 32-36.
Torke, A. M., Corbie-Smith, G., & Branch, W. T. (in press). African American patients’ perspectives on medical decision making. Archives of Internal Medicine.
Trees, A., Koenig Kellas, J. and Roche, M. I. (in press). Narrative Theory. In C. Gaff and C. Bylund, (Eds.), Talking about Genetics: A Family Affair, Oxford Press.
Van Riper, M. (in press). Genomics and the family: Integrative frameworks. In K.P. Tercyak (Ed.) Handbook of genomics and the family. New York: Springer.
Van Riper, M. (2007). Families of children with Down syndrome: Responding to a “change of plans” with resilience. Journal of Pediatric Nursing, 22, 116-128.
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Van Riper, M. (2007). Book Review: Miller, S.M. McDaniel, S.H., Rolland, J.S., & Feetham, S.L. (Eds.). (2007). Individuals, families, and the new era of genetics: Biopsychosocial perspectives. Journal of Family Nursing, 13, 388-390.
Walker, R. L. (in press). Respect for Rational Autonomy. Kennedy Institute of Ethics Journal.
Walker, R. L. (2008). Medical ethics needs a new view of autonomy. Journal of Medicine and Philosophy, 33(6), 594-608.
Walker, R. L., & Ivanhoe, P. J. (Eds.). (2007). Working virtue: Virtue ethics and contemporary moral problems. Oxford, UK: Oxford University Press.
Wang, R. & Henderson, G. E. (2008). Medical research ethics in China. Lancet, 372(9653),1867-8. Epub 2008 Oct 17.
Wheeler, A., Skinner, D., & Bailey, D. B. (2008). Perceived quality of life in mothers of children with fragile X syndrome. American Journal on Mental Retardation, 133(3), 159- 177.
Whitmarsh, I. (in press). Hyperdiagnostics: Postcolonial utopics of race-based biomedicine. Medical Anthropology.
Whitmarsh, I. (2008). Biomedical ambiguity: Race, asthma, and the contested meaning of genetic research in the Caribbean. Ithaca, NY: Cornell University Press.
Whitmarsh, I. (2008). Biomedical ambivalence: Asthma diagnosis, the pharmaceutical, and other contradictions in Barbados. American Ethnologist, 35(1), 49-63.
Whitmarsh, I., Davis, A., Skinner, D., & Bailey, D. (2007). A place for genetic uncertainty: Parents valuing an unknown in the meaning of disease. Social Science and Medicine, 65, 1082-1093.
Williams, S. W., Hanson, L. C., Boyd, C., Green, M., Goldmon, M., Wright, G., Corbie-Smith, G. (2008). Communication, decision making, and cancer: What African Americans want physicians to know. Journal of Palliative Medicine, 11(9), 1221-6.
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